Saturday, May 13, 2017

San Francisco & Arya's Procedure

This month will probably go down in history as the most difficult month of our lives....




Due to Arya's condition, he needed to have OHS done this month. So before we got to it, and since it was in San Francisco UCSF, we decided to go there earlier and enjoy some of the fun things to do with him.



Before our journey, we went and saw Guardians of the Galaxy 2. It was really good. All of us enjoyed it!

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Then after arriving at San Fran we went to the Denny's inside the Holiday Inn and had some dinner.

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Then to the hotel for some rest.

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We took a stroll on the Wharf and checked out Ripley's Believe it or Not. It was interesting.


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We also got a chance to see Arya's favorite YouTuber "Dan TDM" live at the Masonic Center. It was filled with so many kids who love this guy from England who plays games on Youtube! Who would've thought?

Then after all the fun was over, came the dreaded time for the hospital...

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We checked into UCSF Benioff Children's Hosipital on May 8th.

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Arya got admitted to his own room and a series of tests began...echocardiogram, ekg, bloodwork, vitals, etc..


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We kept ourselves busy in his room until the morning of the procedure.

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Then the morning came around 7am and we went with our sweet Arya to the anesthesia area and operating room where we had to put on space looking clothes and kiss him goodbye for a bit. * cry *

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When we got to see him in the ICU this was how he looked. Tubes everywhere and so many monitors.

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It seem like an eternity for him to wake up. The procedure itself took 4 hours. It was called a Sub-aortic membrane resection. And another 4 hours waiting for him to come out of anesthesia. This picture (above) is when he was still under in the ICU.

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When he woke up he had a tube in his throat and couldn't talk, but when the nurses asked him questions he would give us hand signals. After they took that long tube out we were so relieved.

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Our days in the ICU were 3 - 9th, 10th, and 11th. then on the 11th we were moved to recovery.

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Many more checkups and tests were conducted and daily chest xrays, Sometimes 2x a day.
But slowly he was able to move more and sit up. The pains were everywhere and the challenging parts were the medications he had to take and how his stomach did not like them at all.

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They were trying to keep him busy with different things..games on the tv screen, visitors,...and one of them was the SF PD came to visit and play with him


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We started our walks and that helped get his body moving on the inside.

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The nights were long and challenging. Sleep deprivation had become the norm.



The rosy cheeks returned and that beautiful smile. And slowly more tubes came off and bandages.

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My baby was sick of everything and so badly wanted to come home. His tummy had become pretty messed up from all the meds and vomiting and bathroom issues. But the good thing was the hardest part was over. THis was minor.

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Thankfully we were able to make it back home saturday May 13th, the day before mother's day. :)

We thank You, God for being our rock and so thankful that everything went well and we were able to give Arya the quality care that he needed to fix his condition. Happy days are ahead and a long road for recovery...but slowly and surely we look towards the rainbow....

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